The Conill Institute for Chronic Illness

The Conill Institute for Chronic Illness provides education for healthcare professionals to increase empathy, knowledge, and awareness about people living with chronic illness and physical disability.

About

Programs

Calendar

Degenerative Nerve Disease or Nervous System Disorders

Multiple Sclerosis
	The National Multiple Sclerosis Society is dedicated to ending the devastating effects of multiple sclerosis.
	Greater Delaware Valley Chapter of the National Multiple Sclerosis Society A focal point for interaction and serves as a way to keep friends of the Society informed about news, events, programs and how to make a difference in the fight against MS.
	AVONEX® Avonex Information: The Avonex Alliance provides people with MS, their care partner, and healthcare professionals with important information, assistance, and support to help ensure a positive Avonex treatment experience.
	MSWatch , keep watch on multiple sclerosis. MSWatch is the first site on the Web that lets you manage your multiple sclerosis. More than just a Web page, MSWatch is a whole world of multiple sclerosis management tools at your fingertips. MSWatch is provided to you at no cost.
	Jimmie Heuga Center Medical Program A nonprofit scientific research organization "Reanimating the Physically Challenged"®.
Spinal Cord Injury
	The primary mission of the National Spinal Cord Injury Association (NSCIA) is to work to empower individuals and families with spinal cord injury issues to make informed choices and take actions to achieve their highest level of independence and personal fulfillment.
	Christopher Reeve Paralysis Foundation is a national nonprofit organization whose mission is to encourage and support research to find a cure for paralysis caused by spinal cord injury and other central nervous system disorders. It raises money to fund worldwide research programs. It evaluates and selects these programs utilizing councils of internationally, renowned independent neuroscientists
Myasthenia Gravis
	www.4-mga.org To promote the better understanding of the physical condition called Myasthenia Gravis through: Education and information programs Support services to improve the quality of life for MG patients and their families The funding of research to ultimately result in the elimination of Myasthenia Gravis
Cerebral Palsy
	United Cerebral Palsy For 50 years, UCP (a.k.a. United Cerebral Palsy) has been committed to change and progress for persons with disabilities. As one of the largest health charities in America, UCP's mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities, through our commitment to the principles of independence, inclusion and self-determination.

Degenerative Brain Disorders

Alzheimer's Disease
	The Alzheimer's Association, a national voluntary health organization, provides information and services to people with Alzheimer's, caregivers, researchers, physicians, and health care professionals.
Parkinson's Disease
	Parkinson's Disease Foundation The PDF is a leader in funding research and education for Parkinson's Disease.
	Parkinson's Web The Parkinson's web is a reviewed categorical listings of Parkinson's disease resources.

Diabetes

General
	American Diabetes Association This site offers the latest information on diabetes and living with the disease.
	American Academy of Family Physicians Diabetes Information from American Family Physician
	Centers for Disease Control and Prevention Diabetes Frequently Asked Questions (FAQ)
	National Institute of Diabetes and Digestive and Kidney Diseases Diabetes Dictionary Diabetes Overview Health Information: Diabetes
Juvenile Onset
	Children with Diabetes The on-line community for kids, families and adults with diabetes.

Musculoskeletal Disease/Disorder

Amputation
	www.amputee-online.com The Online Resource for Amputees
	www.eatonhand.com Electronic Textbook of Hand Surgery
Arthritis
	www.arthritis.org The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
Chronic pain
	www.thebody.com/nih/pain/toc.html Chronic Pain -- Hope Through Research, from National Institute of Neurological Disorders and Stroke, at The Body, the complete AIDS and HIV information resource.
Muscular Dystrophy
	Muscular Dystrophy Association The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
Spina Bifida
	Spina Bifida Association of America The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.

Pulmonary

American Lung Association
Since 1904, the American Lung Association has been working to ensure that all Americans breathe easier. Our mission is to prevent lung disease and promote lung health. This goal is crucial.

The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

The Cystic Fibrosis Foundation is proud to be a resource of information about cystic fibrosis. The information provided here should never take the place of advice from your personal health care provider. Be sure to check with your physician about changes in your treatment regimen.

Disability and Rehabilitation

www.resna.org
RESNA is an interdisciplinary association for the advancement of rehabilitation and assistive technologies (AT).

Funded by NIDRR; National Institute on Disability and Rehabilitation Research
General Disability Resources
RESNA (Rehabilitation Engineering and Assistive Technology Society of North America)

Gastrointestinal Disorders

Inflammatory Bowel Disease
	Crohn's and Colitis Foundation of America CCFA's mission is to cure and prevent Crohn's disease and ulcerative colitis through research, and to improve the quality of life of children and adults affected by these digestive diseases through education and support.
Hepatitis
	National Kidney foundation Preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by these diseases and increasing the availability of organs for transplantation
	National Hepatitis C Coalition The National Hepatitis C Coalition, Inc. is the original non-profit, tax-exempt hepatitis C coalition of patients and families dedicated to providing education and support through online communications, Hep C Hotline, and grassroots support groups across America.
	Hepatitis Information Network HepNet is a huge hepatitis resource, providing updates on patient care issues, serology, new clinical papers, news releases and more.

Care Partners

National Family Caregivers Association Dedicated to making life better for America's family caregivers. Includes information on NFC Month, caregiving resources, and services for caregivers

Chronic Fatigue Syndrome

	American Association for CFS Learn about the organization and its activities and access a collection of chronic fatigue syndrome related information.
	The CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) Association of America National organization working to conquer chronic fatigue and immune dysfunction syndrome (CFIDS, CFS, M.E.) through effective education, advocacy and research

Other sources for chronic illness:

	The Chronic Illness Initiative (CII) provides access to higher education for students disabled by a chronic illness.
	Who Cares: Chronic Illness in America. Fred Friendly Seminars takes on America's burgeoning crisis in chronic illness.
	Inglis House provides both institutional and non-institutional services such as adult day care, wheelchair communities, nursing homes, much more) for people with physical disabilities, through those services, to help maximize their independence.
	University of Pennsylvania Health System's online resource for information about health care, medical research and the education of health care professionals.
	Giant Disability Resource Page is a resource page of links to Disability Related and Assistive Technology Sites on the World Wide Web.
	Women's Calendar - The Women's Calendar is the largest listing of women's events covering every possible venue, topic or issue important to women. Women's Calendar is a superb networking tool for women.